This had been a cause of concern for me in the past couple of days, but nobody seemed to think she was in need of immediate surgery or anything. When I went to visit Saturday night, the nurse on call said they were going to give her a cat scan in the morning to check on things. The next day I happened to get there right when they were about to wheel her down for the scan, so I waited upstairs with Velle while she went down. She was back within 20 minutes, and the nurse told me they were going to give the results to the neurologist and take it from there. This morning, when I arrived with Kristin and Kat, they were in the middle of switching nurses, so it took awhile for someone to come in. I asked her if they knew the results of the cat scan, and she seemed confused for a second than said hold on I'll check on that. She came back about a half hour later and said the ventricles were larger, but no surgery is scheduled for this time. I drove back home, and I was there for about an hour, when one of the nurses who works with the neurosurgeons called me and said they decided she needed the surgery, and they had scheduled it for tomorrow morning at 10:30 am. She asked if I was going to be in tonight so I could sign papers. I told her I could come in first thing in the morning, but she said the anesthegiologist wants everything in order first thing, so I was able to do an over the phone consent. She then briefly explained the procedure, and told me she would see me in the morning. So that is the latest news I will update tomorrow after surgery. Good luck to my little Lilah!!
Monday, April 26, 2010
Surgery Rescheduled
Talk about a roller coaster ride. They have now decided that she does indeed need a shunt and scheduled her for surgery tomorrow morning. The past couple days she has been doing really good, taking her feeds well and keeping her oxygen levels. In fact today she was off actual oxygen, just had a little blow by air. They were planning on taking the nose canulas off tonight to see how she does. I am so excited to see my baby without those awful things in her nose. Her head size had increased slightly. I didn't notice too much in person, but when I looked over pictures I had taken today. I could definately see a difference. Kat and Kristin, who hadn't seen her in awhile noticed it too. You can see in the pictures below how bulged out her head is in the front.


This had been a cause of concern for me in the past couple of days, but nobody seemed to think she was in need of immediate surgery or anything. When I went to visit Saturday night, the nurse on call said they were going to give her a cat scan in the morning to check on things. The next day I happened to get there right when they were about to wheel her down for the scan, so I waited upstairs with Velle while she went down. She was back within 20 minutes, and the nurse told me they were going to give the results to the neurologist and take it from there. This morning, when I arrived with Kristin and Kat, they were in the middle of switching nurses, so it took awhile for someone to come in. I asked her if they knew the results of the cat scan, and she seemed confused for a second than said hold on I'll check on that. She came back about a half hour later and said the ventricles were larger, but no surgery is scheduled for this time. I drove back home, and I was there for about an hour, when one of the nurses who works with the neurosurgeons called me and said they decided she needed the surgery, and they had scheduled it for tomorrow morning at 10:30 am. She asked if I was going to be in tonight so I could sign papers. I told her I could come in first thing in the morning, but she said the anesthegiologist wants everything in order first thing, so I was able to do an over the phone consent. She then briefly explained the procedure, and told me she would see me in the morning. So that is the latest news I will update tomorrow after surgery. Good luck to my little Lilah!!
This had been a cause of concern for me in the past couple of days, but nobody seemed to think she was in need of immediate surgery or anything. When I went to visit Saturday night, the nurse on call said they were going to give her a cat scan in the morning to check on things. The next day I happened to get there right when they were about to wheel her down for the scan, so I waited upstairs with Velle while she went down. She was back within 20 minutes, and the nurse told me they were going to give the results to the neurologist and take it from there. This morning, when I arrived with Kristin and Kat, they were in the middle of switching nurses, so it took awhile for someone to come in. I asked her if they knew the results of the cat scan, and she seemed confused for a second than said hold on I'll check on that. She came back about a half hour later and said the ventricles were larger, but no surgery is scheduled for this time. I drove back home, and I was there for about an hour, when one of the nurses who works with the neurosurgeons called me and said they decided she needed the surgery, and they had scheduled it for tomorrow morning at 10:30 am. She asked if I was going to be in tonight so I could sign papers. I told her I could come in first thing in the morning, but she said the anesthegiologist wants everything in order first thing, so I was able to do an over the phone consent. She then briefly explained the procedure, and told me she would see me in the morning. So that is the latest news I will update tomorrow after surgery. Good luck to my little Lilah!!
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