Happy Birthday Velle!!!
I survived Chevelle's birthday party without killing anyone, so that was good. It went really well, she had some friends show up, and all her cousins were here. Everyone had a blast. The night prior to her party, Josh's mom and sister-in-law came up and took all the kids to the Best Western for the night to go swimming, and to sleep in the hotel. Before they headed over there, I took them to to hospital to see Lilah, it was late so I was hoping to meet up with Dr. Allen to see what he had to say. The nurse she had came in and said she has been doing great with her oxygen, and had a really good night. They had attempted to bottle feed, but her oxygen leveles kept dipping low, and it seemed to stress her out. They wanted to make bottle feeding a positive experience, and not have her associate it with stress, so they stopped. It must of really tired her out because the next day she was really sleepy. She said if I hung around for a couple Allen should be in. He came by shortly after, and I asked him what the plan was. He said he did an ultrasound and the venrticles were bigger, also her head circumference had been slowly going up the past couple days (about a quarter centimeter each day). I asked him if he was planning on inserting another EVD (drain), and he said this time he wanted to wait it out and see what happens, sometimes the ventricles will become enlarged and than go back down. The fluid slowly builds up, so unless there is a dramatic change in the fluid, it won't cause any damage, and they will take action before that happens. I asked him if he was waiting to insert a shunt, and he said he didn't want to do that because he doesn't think it'll work. Her ventricles still have a lot of clotted blood in them due to the bleed, so he's afraid if he puts one in the blood will just clog it. Well I hope they know what they're doing, because I kind of dislike this wait and see attitude when it come to my child's brain. Other than that she is gaining weight, and doing really well.
After the party Saturday, Josh and I decided to go to the hospital while Kat stayed with the kids. Lately they have been letting us take her out and put her back ourselves, as long as she seems to be stable. I took her out when I got there, she had just been fed, so she was dead to the world. I rocked her for a little while, then Josh said he wanted to hold her. Since she has been born, he has sacrificed his time to hold her so I could get as much bonding time as possible. I am happy that she is well enough to be able to be passed around. I think he is as in love with her as I am. She was so comfortable that she actually had a major de-sat (drop in oxygen level) It went from 95 to 49, the nurse came in and picked her up and flicked her feet and rubbed her chest. She was trying to wake her up because she was sleeping so deeply. She said sometimes when they are held, they get too comfortable and forget to breathe. Sounds sweet but it was definately scary.
I went to the hospital yesterday by myself, and again she was doing great, and looked great, so I took her out and held her and rocked her, the nurse said her head circumference was up another half centimeter to 31.5, a week ago it was 30 and a quarter. I am anxious to go in today to see if Allen did another head ultrasound, and to see what the plan of action is, if any. I will keep you all updated as soon as I hear anything. I want to thank everyone again for their support!
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